RUBY’S RAINBOW IN THE MEDIA AND ON THE WEB:

 

FOR ARTICLES AND INTERVIEW REQUESTS:

CONTACT:

For interview requests or other information, email:

  • Liz Plachta: liz@rubysrainbow.org
  • Tim Plachta: tim@reliantwealth.com

BIOGRAPHY:

Ruby’s Rainbow co-founders Liz and Tim Plachta are the proud parents of three-year-old Ruby and her big sister, Ella Mae.

For Liz — truly the driving force behind Ruby’s Rainbow — the drive to start this organization came from her adoration for her family. Her passion to provide her children with the best inspired her to help other families like hers with educational costs and support. It is also Liz’s goal to raise society’s expectations of individuals with Down syndrome.

Tim was a teacher for eight years, spending most of that time working with children with special needs. Then, in 2012, he opened his own investment firm, Growing Green Financial, LLC, in order to serve the financial needs of special-needs families just like his own.

FACTS AND STATISTICS:

About Ruby’s Rainbow:

Since its launch in 2012, Ruby’s Rainbow…

  • has established two local successful annual fundraisers: the Maudie’s cup, a corporate golf tournament; and the Rockin’ RainBOWL, a family bowling event hosted at Austin’s Dart Bowl.
  • They have also created the 3/21 Pledge, which is their national fundraising event  that goes for two weeks before World Down Syndrome Day on 3/21.
  • as of 2016, has granted $290,000 in post-secondary educational scholarships.
  • as of 2016, has granted 108 educational scholarships to individuals with Down syndrome who are going for their dreams of higher education and independence.

About Down syndrome:

  • Also called trisomy-21, Down syndrome results from the presence of a partial or full third copy of the 21st chromosome.
  • It is a naturally occurring chromosomal arrangement that happens at conception.
  • About one in 700 babies in the US is born with Down syndrome.
  • Down syndrome is typically associated with certain physical characteristics, such as shorter stature, lower muscle tone and slightly slanted, almond-shaped eyes, along with developmental delays and mild to moderate intellectual disability.
  • Down syndrome (note that “Down” is singular and “syndrome” is not capitalized) is named after John Langdon Down, the English physician who first published scholarly work about individuals displaying the physical and developmental characteristics listed above.
  • In 1983, the average life expectancy for someone with Down syndrome was just 25 years; now, it is 60 years — and counting.

— From the National Down Syndrome Society

 

PERSON-FIRST LANGUAGE:

              INCORRECT: “…a little Down’s girl…”

              CORRECT: “…a little girl with Down syndrome…”

 

              INCORRECT: “She has Down’s.”

              CORRECT: “She has Down syndrome.”

 

              INCORRECT: “Joe is Down’s. He’s very funny.”

              CORRECT: “Joe, who has Down syndrome, is very funny.”